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New Here - Rhythmic Movement Disorder ?

Question:
something I've learned has a name - Rhythmic Movement Disorder - but for sure not a newcomer to THAT - I've had it since my date of birth!

For my whole life I've been yelled at - punished, kicked out of beds, etc. I've even been pulled out of a tent during a Boy Scout camping trip and placed by the fire in a million blankets because they thought I had hypothermia! :-) I've had a dog bite me too - a dog that was not amused by my nighttime rocking, didn't understand it, and bit me, I've even had a friend's brother assume I was "freaking out on drugs in my bed" :-)

Because it's been a part of my sleep my whole life - I've been wary to assume it's something that can be even be fixed. It doesn't effect ME at all - only those around me - it would be sort of NICE to be able to sleep in the same bed as my wife - so yesterday I went to a sleep theropist and we talked. He listened to all of my conerns and in the end put me on a drug - Klonopin - I've seen that name mentioned here a few times in this NG browsing.

How many of you have RMD? Is there anyone here with it?

I took the Klonopin last night - .5 mg for the first week and if that doesn't stop it I'm to move to 1 mg at night until I again see the sleep doctor. So far I rocked away the first night on it - my wife kicked me out of bed of course, and when she woke me this morning (in my "computer room" bed) - I was rocking away....


Answer:
Does your RMD include "head banging"? I can't remember what it is called at the moment...jacinto capi something or another. I have a niece who is has this...head banging...since childhood. She is now 27 and still does this. Since I have sleep disorders she asked me to help her. Have not been able to get her to go to a doctor yet :(((( There seems to be very little information on the internet about this. From what I have read, it occurs in childhood and usually goes away in the teen years.

Will tell her to get to a doc and ask about the Klonopin.

I've never looked to see if this was a specific diagnosis, but I suspect it's what I've had all my life. I always rocked myself to and during sleep, and especially in the lighter stages of sleep. My mother was not thrilled by my hair in morning when I was a child, and I'm sure that's why I had very short hair when i was younger. I have grown out of it a bit, especially since marriage, but since then I've developed sleep apnea! I found that sleeping in a waterbed made rocking much harder ( but much more disturbing to my husband when I did!)

That's an idea! The other option I've considered is putting two single beds together so my rocking doesn't effect my wife so much - but that's quite a bit to go through of course. :-)

My rocking calmed down a bit too - but has picked back up again in recent years. :-(

Very nice to meet you and thanks for sharing this info! Has your RMD ever caused trouble for your spouse?

I have another bed I can go to - so many nights I'll start out in her bed and she'll simply kick me out the first time I wake her with my RMD - I'll go on down to the spare bed and sleep away.

I can also of course know where your husband is coming from - it's no fun being the person that causes so many sleepless nights for others either. :-(

Hang in there Katie! If you'd like I can let you know if these prescribed meds do

the trick to stop the rocking and perhaps your hubby can get on them too if he's interested.




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