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Fatal Familial Insomnia ?

Question:
Please someone reassure me that I do not have this disease. In researching total insomnias it's about the only thing I've found a lot on. Now it's 9:45 and I am very unbelievably paranoid. Jesus, I have the insomnia and twitching down pat. I know I am neurotic, but it's because of the extremity of my situation! I am a blood worker too!!! AAAAAAAAAAAAAAGGGGGGGGGGHHHHHHH!!!!!!! Too much halcion last night made me anxious. And I'm sure I've probably got borderline dementia because I think my IQ has dropped fifty points in six months. I forget words. It's hard to explain how dumb and foggy and lost I feel. I thought it was a combo sleep deprivation and sleeping pills. Maybe it's FFI. I am going to call my doctor tomorrow and ask for a spinal tap... Help, I am freaking out? Does anyone else freak out like this about their problem? I feel like a mutant, like a diagnostic nightmare freak! This is hell. Could I have this horrible degenerative disease? I had cancer as a kid that went undiagnosed a long time, can you tell how much therapy I needed for this? LOL? Help me, I am being totally sincere here, letting my guard down!


Answer:
Sorry, but you have a good dose of panic disorder Sakina. If not panic, then a virulent anxiety disorder. It may stem from the sleep disorder, and probably does. I would recommend a tricyclic class of medication, like imipramine. Have you even BEEN sleep studied?

Just know that symptoms can subside, but you might have a rough year.

Don't worry too much about ol' me. Today I have recovered from my FFI and now only have Wilson's Disease. Honestly, my trouble is just that I am undiagnosed, afraid, and having some pretty icky symptoms, insomnia being one of them. I swear, I am not a hypochondriac, and most of the time my anxiety is 1.) normal given my situation 2.) more intellectual than physical or emotional or 3.) secondary to my halcion use. I am just seeking answers, and finding disturbing possibilities in the process. Doctors don't seem to give you the time of day unless you're bleeding from the eyes. The worse it gets, the more I push. And since I'd feel like I was kookoo for Cocoapuffs if I voiced my fears to my loved ones, I turn to my Internet family for reassurance.

Just got back from Stanford today. They agreed with me, that it's probably neurological, not psychiatric. Too severe without overt emotional stuff, also too many muscular symptoms. Been up since yesterday morning, 6 am. It's now 2 pm. Tired. Drove too far. Meds failed me last night. Scary. They said I need to press my neurologist for diagnosis, and get treatment. I went by his office, said call tomorrow. Stanford said hundreds of neurodegenerative conditions can result in insomnia. Any info on this appreciated. Want badly to know what's my problem. As usual they said they couldn't help, just take ambien and halcion, pursue neurological testing. Tremor's been severe.


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