Question:
I am looking to contact people with fibromyalgia/chronic fatigue syndrome who
are currently receiving treatment with human growth hormone to ask them about
their experience.I am considering this treatment for myself.
Answer:
I have fibromyalgia, diabetes and arthritis. For the past year, I have
participated in a double-blind study of recombinant human nerve growth
factor for persons with diabetic neuropathy. I believe I have been on
the placebo because it has not helped my neuropathy/FM and because if
you are on "the drug" it can cause swelling at the injection site. I
have agreed to be on the extension study that will allow me to have the
real thing. I should start in 2 weeks. I have to take 3
injections/week and will be given a six month supply free until such
time as the drug manufacturer brings it on the market. You and the
group's prayers are needed. I will let you know how things are going.
