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Is this group about Chronic Fatigue Syndrome?

Question:
Any one out there have experience with Epstein Barr Virus and Mononucleosis? My daughter has somehthing. Had it for years. Sleep, tired, low energy, hard to concentrate. Doctors call it Chronic Mono. I don't know what to call it. We don't know what to do, but we could use some help/advice.


Answer:
Thats my story, too. Eleven long years. Except I am the mother and caught it (mono) from my son who got over his and is just fine.

What to do? I wish someone knew! Have you had your daughter's cortesol/cortesone levels checked? I started taking low dose cortesol 2 years ago and it has made my life more tolerable, but not a cure. There is some research going on about abberant strains of herpies type viruses that cause mono. I just wish the research would go faster.


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